Page 145 - Petelin, Ana, et al. Eds. 2019. Zdravje otrok in mladostnikov / Health of Children and Adolescents. Zbornik povzetkov z recenzijo / Book of Abstracts. Koper: Založba Univerze na Primorskem/University of Primorska Press
P. 145
act of the social exclusion of mothers on the lives of their otrok in mladostnik – okolje | child and adolescent - environment
children
Irena Ceglar
Center za usposabljanje, delo in varstvo Radovljica, Cesta na jezerca 17,
4240 Radovljica, Slovenia
Introduction: More and more women with an intellectual disability have chil-
dren, which relates to present social views of what it means to be an adult with
an intellectual disability. Families in which a mother has an intellectual disabili-
ty and in which children are growing up are faced with various problems that
need to be viewed contextually.
Methods: qualitative methodology was used. 12 research interviews with
mothers with intellectual disabilities, who are users of Slovenian institutions
for people with intellectual disabilities, were conducted. One of the research
questions was is it true that motherhood is not an individual, singular activity
of an individual women.
Results: The results of qualitative research indicate the social exclusion of fam-
ilies in which a mother or both parents have an intellectual disability. There is a
lack of resources, such as a safe and suitable home, and adequate financial in-
comes, the problem of accessibility due to lack of own transport, the need for
adapted services and extremely weak social affiliation has emerged.
Discussions and Conclusions: Many of the problems that mothers with intellec-
tual disabilities have, derive from their social situation, and not simply from the
nature of their disabilities. Families perform their parental tasks in difficult situ-
ations, without proper social connections and support in communities that are
not adapted to their needs. All this presents stress and affects all family mem-
bers.
Keywords: social exclusion, mothers, intellectual disabilities, lack of
resources, social affiliation
143
children
Irena Ceglar
Center za usposabljanje, delo in varstvo Radovljica, Cesta na jezerca 17,
4240 Radovljica, Slovenia
Introduction: More and more women with an intellectual disability have chil-
dren, which relates to present social views of what it means to be an adult with
an intellectual disability. Families in which a mother has an intellectual disabili-
ty and in which children are growing up are faced with various problems that
need to be viewed contextually.
Methods: qualitative methodology was used. 12 research interviews with
mothers with intellectual disabilities, who are users of Slovenian institutions
for people with intellectual disabilities, were conducted. One of the research
questions was is it true that motherhood is not an individual, singular activity
of an individual women.
Results: The results of qualitative research indicate the social exclusion of fam-
ilies in which a mother or both parents have an intellectual disability. There is a
lack of resources, such as a safe and suitable home, and adequate financial in-
comes, the problem of accessibility due to lack of own transport, the need for
adapted services and extremely weak social affiliation has emerged.
Discussions and Conclusions: Many of the problems that mothers with intellec-
tual disabilities have, derive from their social situation, and not simply from the
nature of their disabilities. Families perform their parental tasks in difficult situ-
ations, without proper social connections and support in communities that are
not adapted to their needs. All this presents stress and affects all family mem-
bers.
Keywords: social exclusion, mothers, intellectual disabilities, lack of
resources, social affiliation
143
