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Quality of Life of Families of Early Aged Children with Disabilities
Table 1 Examples of Behavioural Problems’ Indicators (PEDsQL Generic Scale)
Domain Indicator
Physical Participation in an active game or physical activity
functioning Help with collecting toys
Feeling pain
Emotional Low energy level
functioning Feeling fear
Sleep difficulties
Social Feeling anger
functioning Other kids do not want to play with your child
Functioning Unable to do things other kids of his/her age can
in a kindergarten Does not perform same activities in the kindergarten as his/her peers
Absence from the kindergarten for not feeling well
Absence from the kindergarten to go to the doctor’s or hospital
parents, which can serve as one of the indicators of the quality of family life.
Problems can be manifested as problems in the physical, social or emotional
functioning of a child. We started from the assumption that the problems as-
sociated with certain areas of child functioning would be significantly more
present in children with disabilities.
The research was conducted through an on-line survey that was forwarded
to parents’ associations of children with disabilities as well as parents of typ-
ical children who attend the kindergarten. Parents’ opinion on the impact of
the disabilities of the child on the functioning of their families was obtained
by the PEDsQL generic scale questionnaire – the family impact module. PED-
sQL is a generic instrument that measures the quality of life of a wide popula-
tion in relation to the health of children aged 2 to 18. It is used both for clinical
and research purposes. The survey used part of the questionnaires filled in by
parents of children aged 2 to 4. It consists of 23 items and assesses the qual-
ity of life through 4 domains: physical functioning (8 items); emotional func-
tioning (5 items); social functioning (5 items); functioning in kindergarten (5
items). Answers to questions range from 0 to 4, where 0 refers to behaviours
that never pose a problem to a child, 1 – almost never, 2 – sometimes, 3 –
often, while 4 refers to behaviours that almost always represent a problem.
The questions relate to behavioural problems that have occurred over the
past month compared to the time of the survey. Table 1 presents some of the
behavioural indicators that affect the quality of life of the whole family.
The survey sample consisted of 81 respondents (44.4 of parents of chil-
dren with disabilities, 55.6 of parents of children with typical development).
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Table 1 Examples of Behavioural Problems’ Indicators (PEDsQL Generic Scale)
Domain Indicator
Physical Participation in an active game or physical activity
functioning Help with collecting toys
Feeling pain
Emotional Low energy level
functioning Feeling fear
Sleep difficulties
Social Feeling anger
functioning Other kids do not want to play with your child
Functioning Unable to do things other kids of his/her age can
in a kindergarten Does not perform same activities in the kindergarten as his/her peers
Absence from the kindergarten for not feeling well
Absence from the kindergarten to go to the doctor’s or hospital
parents, which can serve as one of the indicators of the quality of family life.
Problems can be manifested as problems in the physical, social or emotional
functioning of a child. We started from the assumption that the problems as-
sociated with certain areas of child functioning would be significantly more
present in children with disabilities.
The research was conducted through an on-line survey that was forwarded
to parents’ associations of children with disabilities as well as parents of typ-
ical children who attend the kindergarten. Parents’ opinion on the impact of
the disabilities of the child on the functioning of their families was obtained
by the PEDsQL generic scale questionnaire – the family impact module. PED-
sQL is a generic instrument that measures the quality of life of a wide popula-
tion in relation to the health of children aged 2 to 18. It is used both for clinical
and research purposes. The survey used part of the questionnaires filled in by
parents of children aged 2 to 4. It consists of 23 items and assesses the qual-
ity of life through 4 domains: physical functioning (8 items); emotional func-
tioning (5 items); social functioning (5 items); functioning in kindergarten (5
items). Answers to questions range from 0 to 4, where 0 refers to behaviours
that never pose a problem to a child, 1 – almost never, 2 – sometimes, 3 –
often, while 4 refers to behaviours that almost always represent a problem.
The questions relate to behavioural problems that have occurred over the
past month compared to the time of the survey. Table 1 presents some of the
behavioural indicators that affect the quality of life of the whole family.
The survey sample consisted of 81 respondents (44.4 of parents of chil-
dren with disabilities, 55.6 of parents of children with typical development).
215
