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Quality of Life of Families of Early Aged Children with Disabilities
lies of children with developmental disabilities is significantly different from
the same in the families with typical children, has been confirmed. The sec-
ond one, referring to the fact that the quality of life of families of children
with developmental disabilities is disturbed more in the domain of emo-
tional and social than physical functioning, has been partly confirmed, since
social functioning is truly poorly assessed, but in the emotional functioning
we obtained diametrically opposite results.
The results we obtained in our study, as well as theoretical insight into the
problem of the research, indicate that it is necessary to recognize risk factors
when selecting and planning social activities aimed at empowering the fam-
ily of a child with developmental disability and then promote measures that
support and improve the quality of life of such family. Supporting families of
early aged children with disabilities is important potential for development
of inclusive society and leads to preservation of the family’s capacity, given
that the family represents primary and, at the same time, crucial social com-
munity.
References
Araujo de Melo, E. L., M. Badia Corbella, M. Begona Orgaz Baz, M. A. Verdugo, M.
A. Alonso, B. Arias Martinez, M. Gomez-Vela, and A. M. Ullan. 2012. ‘Quality
of Life in Children and Adolescents with Cerebral Palsy.’ Revista Brasileiraem
Promocao da Saude 25 (4): 426–434.
Axelsson, A. K., M. Granlund, and J. Wilder. 2013. ‘Engagement in Family Activ-
ities: A Quantitative, Comparative Study of Children with Profound Intel-
lectual and Multiple Disabilities and Children with Typical Development.’
Child: Care, Health and Development 39 (4): 523–534.
Barnett, D., M. Clements, M. Kaplan-Estrin and J. Fialka. 2003. ‘Building New
Dreams: Supporting Parents’ Adaptation to Their Child with Special Needs.’
Infants and Young Children 16 (3): 184–200.
Brown, I., S. Anand, W. A. Fung, B. Isaacs, and N. Baum. 2003. ‘Family Quality of
Life: Canadian Results from an International Study.’ Journal of Developmen-
tal and Physical Disabilities 15 (3): 207–230.
Davis, K., and S. Gavidia-Payne. 2009. ‘The Impact of Child, Family, and Profes-
sional Support Characteristics on the Quality of Life in Families of Young
Children with Disabilities.’ Journal of Intellectual and Developmental Dis-
ability 34 (2): 153–162.
Emerson, E. 2003. ‘Mothers of Children and Adolescents with Intellectual Dis-
ability: Social and Economic Situation, Mental Health Status, and the Self-
Assessed Social and Psychological Impact of the Child’s Difficulties.’ Jour-
nal of Intellectual Disability Research 47 (1): 385–399.
Florian, V., and L. Findler. 2001. ‘Mental Health and Marital Adaptation among
219
lies of children with developmental disabilities is significantly different from
the same in the families with typical children, has been confirmed. The sec-
ond one, referring to the fact that the quality of life of families of children
with developmental disabilities is disturbed more in the domain of emo-
tional and social than physical functioning, has been partly confirmed, since
social functioning is truly poorly assessed, but in the emotional functioning
we obtained diametrically opposite results.
The results we obtained in our study, as well as theoretical insight into the
problem of the research, indicate that it is necessary to recognize risk factors
when selecting and planning social activities aimed at empowering the fam-
ily of a child with developmental disability and then promote measures that
support and improve the quality of life of such family. Supporting families of
early aged children with disabilities is important potential for development
of inclusive society and leads to preservation of the family’s capacity, given
that the family represents primary and, at the same time, crucial social com-
munity.
References
Araujo de Melo, E. L., M. Badia Corbella, M. Begona Orgaz Baz, M. A. Verdugo, M.
A. Alonso, B. Arias Martinez, M. Gomez-Vela, and A. M. Ullan. 2012. ‘Quality
of Life in Children and Adolescents with Cerebral Palsy.’ Revista Brasileiraem
Promocao da Saude 25 (4): 426–434.
Axelsson, A. K., M. Granlund, and J. Wilder. 2013. ‘Engagement in Family Activ-
ities: A Quantitative, Comparative Study of Children with Profound Intel-
lectual and Multiple Disabilities and Children with Typical Development.’
Child: Care, Health and Development 39 (4): 523–534.
Barnett, D., M. Clements, M. Kaplan-Estrin and J. Fialka. 2003. ‘Building New
Dreams: Supporting Parents’ Adaptation to Their Child with Special Needs.’
Infants and Young Children 16 (3): 184–200.
Brown, I., S. Anand, W. A. Fung, B. Isaacs, and N. Baum. 2003. ‘Family Quality of
Life: Canadian Results from an International Study.’ Journal of Developmen-
tal and Physical Disabilities 15 (3): 207–230.
Davis, K., and S. Gavidia-Payne. 2009. ‘The Impact of Child, Family, and Profes-
sional Support Characteristics on the Quality of Life in Families of Young
Children with Disabilities.’ Journal of Intellectual and Developmental Dis-
ability 34 (2): 153–162.
Emerson, E. 2003. ‘Mothers of Children and Adolescents with Intellectual Dis-
ability: Social and Economic Situation, Mental Health Status, and the Self-
Assessed Social and Psychological Impact of the Child’s Difficulties.’ Jour-
nal of Intellectual Disability Research 47 (1): 385–399.
Florian, V., and L. Findler. 2001. ‘Mental Health and Marital Adaptation among
219
